« Back

Ocrelizumab

Fitted

Thursday February 22 2018 08:43 AM

MS Ireland has made a Patient Group Submission to the National Centre for Pharmaco-economics regarding Ocrevus (ocrelizumab) 

Ocrelizumab is first and only approved disease-modifying medicine for people with early primary progressive MS. The medication is currently being assessed by the NCPE to determine if a recommendation will be made to the HSE that it should be reimbursed by the health system in Ireland. This process is expected to take some months. The Patient Group Submission is an important opportunity to make sure that the voice of people with MS is heard as part of this process. Download our submission

In December 2017, MS Ireland wrote to the Minister for Health asking that he consider introducing a pilot scheme whereby Ocrevus would be made available to people with primary progressive MS (PPMS) while price negotiations are ongoing. Download MS Ireland's letter

MS Ireland awaits a response to this letter. You can help by contacting your local TD, sending them a copy of the letter and asking them to bring it to the attention of the Minister for Health. Make your voice heard lobbying your local TD

Author: MS Ireland

Tags: ocrelizumab, ms, multiplesclerosis

Comments

Sandra

Friday March 09 2018 12:47

I will definitely try to make my voice known. I and so many others with primary progressive ms need this drug as it's the only one that will help us. There are so many drugs out there for relapsing remitting and only one for primary progressive. It really should be top priority.

Aisling

Saturday March 10 2018 10:08

This drug must be made available in Ireland to help the many people suffering with MS. For quality of life this is a must.

Sharon

Saturday March 10 2018 10:17

Make health care equal for all

Michelle

Saturday March 10 2018 10:25

People need this drug

Brenda

Saturday March 10 2018 10:47

Please make this drug available in Ireland

Lynn

Saturday March 10 2018 10:54

Support!

Fionnuala

Saturday March 10 2018 13:49

get this sorted

Zara

Saturday March 10 2018 14:49

This drug should be a priority...why isn't it and when will it be made available for those suffering needlessly! Act today!

Teresa

Wednesday June 27 2018 12:15

Please please make this drug available to us who suffer everyday with primary progressive ms
Why are we denied the only treatment available to us
So many choices for rrms
I live to hear the approval news
Please let it be very soon

MS Ireland

Friday June 29 2018 09:45

Dear Teresa,

Thank you for your enquiry.

MS Ireland are undertaking advocacy work to try and make this medication available to people with primary progressive MS as soon as possible. We had a meeting with Minister Simon Harris on 6th June but sadly this was cancelled and we have not received a rearranged date yet. We are asking everyone affected by this issue to use the site www.patientsdeservebetter.ie to email their local TDs and ask them to raise this issue with the Minister

Add a comment

Your email address will not be published and will only be used by MS Ireland to contact you should there be an issue with your comment.

Please read our policy on making comments. Basically, respect other people’s view, use appropriate language and be nice! Comments are published between 9am and 5pm, Monday to Friday.

We ask this question to ensure that you are a real person, and not a computer adding information automatically.

By commenting, you are adhering to our Terms of use / Privacy

Latest News

More news

What's hot

Whats_hot

Christmas Shop is Open!

Christmas cards, calendar and stocking fillers... start ticking off your Christmas list now!! 

Find out more

Events Calendar

» Our next Event

12 December 2018: A range of alternative therapies starts 31st October (weekly)

View all events

eNEWS SIGNUP

If you'd like to receive e-news updates from The Society please enter your email address below. If you want to know more about how we manage personal data then please see our privacy policy.

My local MSI

Map of MS Ireland's service areas South Mid West West Midlands South East North East North West North Dublin City and Fingal South West Dublin and Kildare South East Dublin and Wicklow