Blog Articles, tagged with: Ms

What They Just Don't Understand

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This week, in a letter to her nearest and dearest, Willeke Van Eeckhoutte puts down in words how she really feels. “What do you want me to say?” Dearly Beloved, What do you want me to say? What is it you don’t understand? When someone like you says, "Well, what do you wa...

Published by Willeke Van Eeckhoutte on Thursday May 10 2018 11:00 AM

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Living with Primary Progressive MS

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This week Mary Deveraux shares with us her experience of Primary Progressive MS. Akin to the big stories we’re all familiar with, PPMS brings unexpected twists to life no-one ever expects.  Living with Primary Progressive MS is like starting a new book, with a difference. Each and eve...

Published by Mary Deveraux on Friday May 04 2018 08:00 AM

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Diagnosed with MS. Now What?

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This week Christina McDonald goes deep into the experience of being diagnosed with MS. From being scared and grieving, she’s learned to doing things differently. More than ever before, she’s chasing her dreams.  There was something in the words “You have MS” that fil...

Published by Christina McDonald on Thursday April 19 2018 11:00 AM

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Life’s Lessons Learned by the MS & Me Blog Team

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With a combined 175 years of living with the diagnosis of multiple sclerosis, the MS & Me blog team shares some golden nuggets of lessons learned. We asked our cadre of MS & Me bloggers what lessons they might have learned living with multiple sclerosis. Our editorial team was surprised ...

Published by MS & Me Blog Team on Thursday April 12 2018 11:00 AM

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MS Fatigue

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Read the first blog for MS and Me from Katie St. Lawrence (24). She shares her experience of what it means to have fatigue, how she deals with it and how, thanks to being strategic about rest, energy and listening to her body, life is as enjoyable as ever. I never knew when I was first diagnosed...

Published by Katie St. Lawrence on Thursday April 05 2018 11:03 AM

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Sensory Experience Café

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Sensory Café Captures Customers ‘Experiencing’ Multiple Sclerosis (MS) Symptoms Captivating video unveiled to show the day-to-day impact of living with MS A sensory-experience café popped-up on Exchequer Street, Dublin 2 on Wednesday, 28th March, to give customers a tr...

Published by MS Ireland/Roche on Friday March 30 2018 12:19 PM

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Disease Modifying Therapies Report

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MS Ireland publishes new report on disease modifying therapies In September 2017, MS Ireland conducted a survey on the perspectives of Irish people with MS on disease modifying therapies (DMTs). 236 people completed the survey. Today (Friday, 29th March 2018) we published a report of the finding...

Published by MS Ireland on Thursday March 29 2018 09:00 AM

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huManS

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'Words for the newly diagnosed from people living with MS’ – new book by Joan Jordan MS & Me Blogger Joan Jordan has produced a new book for people newly diagnosed with MS, called ‘huManS' – Words for the newly diagnosed from people living with MS’. The book wa...

Published by MS Ireland on Wednesday March 28 2018 11:53 AM

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Ocrelizumab

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Minister for Health Simon Harris has agreed to meet with MS Ireland regarding ocrelizumab MS Ireland welcomed the news this morning (Wednesday, 28th March 2018) that a spokesperson from the office of Simon Harris has agreed that the Minister will meet with representatives from the organisation &...

Published by MS Ireland on Wednesday March 28 2018 10:20 AM

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Research Study

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Young adults lived experiences and perceptions of parental MS and how it impacts on them. Niall Moloney, 4th year Occupational Student, NUI Galway is looking for participants to engage in a research study. Who can participate? The participants for this particular study are children of people w...

Published by MS Ireland/Niall Moloney on Friday March 16 2018 07:30 AM

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