Displaying articles 1 - 6 of 43 in total
This week blogger Lucina Russell shares her experience of public and private health insurance. This business of Public v Private has intrigued me since I read the Brian Friel play 'Philadelphia Here I Come', in secondary school. The play illustrates the conflict between Public and Private Gar's ...
Published by Lucina Russell on Thursday July 17 2014 11:00 AM
MS is a life-changing event, but so is having children. If MS had not entered Willeke's life, she absolutely would have wanted children. Although life was good in my last relationship, I secretly decided that having children would probably not be on my list of things to do. Not because of t...
Published by Willeke Van Eeckhoutte on Thursday July 10 2014 11:00 AM
The View from Here; Opinions from a Life with Multiple Sclerosis: 'After his first experience of election season in Ireland, Blogger Trevis L Gleason has some observations' Well, first let me say that I’ve yet to figure out just how the whole ballot sorting business is carried out here in...
Published by Trevis Gleason on Thursday July 03 2014 11:00 AM
Employment affects your brain, your mental health, the money in your pocket and life you get to live. This week Emma Rogan discusses the value of work from her perspective and how having something to wake up FOR can transform our lives. What did you do today? Did you get up, shower, dress,...
Published by Emma Rogan on Thursday June 26 2014 11:00 AM
Ah, public transport… Train stations without elevators or escalators; Buses with seats for elderly or disabled people; Crutches or walking sticks you want to throw from the train right into the Irish Sea. We’ve all been there, needing escalators instead of high, rusty, wobbly, wet a...
Published by Willeke Van Eeckhoutte on Thursday June 19 2014 11:00 AM
There is something about Mary Baker It’s rare to hear somebody frightfully intelligent (Dr., MBE, BA, Hon Dsc) speak so clearly on a complicated subject like the brain. She manages to deliver a powerful message while maintaining a humble and likeable exterior. If she was a rugby play...
Published by Joan Jordan on Tuesday June 17 2014 11:00 AM
MINISTER KELLY RESTORES FUNDING TO HEALTH, DISABILITY & OTHER ORGANISATIONS UNDER SSNO SCHEME The Minister for the Environment, Community and Local Government, Alan Kelly TD announced today (18 July, 2014) that funding is being restored to a number of health, disability and other organisations for a twelve month period, following a review in relation to the SSNO scheme. The funding is being made available to the majority of organisations who were unsuccessful in their applications under the Scheme to Support National Organisations (SSNO) but had received funding previously from it up to 30 June 2014 and submitted a valid application in 2014. Minister Kelly is making available bridging finance totalling just under €1.3 million for a 12 month period to avoid a sudden and adverse impact on these organisations. The funding for each organisation will be restored based on their allocation so far this year. Alan Kelly said: “While I am restoring the funding to these organisations for a twelve month period, it is essential that, that time is used to find a more long-term sustainable solution to the funding problems of these organisations. In all, 30 organisations will have their funding restored until July of next year and the services and advocacy they provide should continue for that period.” “In agreement with my colleague Kathleen Lynch TD, Minister of State at the Department of Health with Special Responsibility for Primary Care, Mental Health and Disability, the public funding of national organisations in the health and disability sector will be reviewed with a view to rationalising the funding of these organisations to ensure efficiency in the use of public money and avoidance of duplication, while providing appropriate support to organisations working in the sector.” This additional funding will amount to €1.28m for the 12 month period to end June 2015. While it was known that the existing scheme was ending at the end of last month and applications were sought for the new scheme with no guarantee of continued funding, it is clear that organisations had become increasingly dependent on this funding. In the circumstances the Minister has decided to allocate this bridging funding for a twelve month period while a review takes place; the arrangements for this review will be finalised shortly. Alan Kelly said that: “The review should result in a system of support and funding for core costs of organisations delivering front line services in the health and disability sector in a way that avoids duplication and is cost effective.” This bridging funding in 2014/2015 is once off transitional funding and will enable organisations to plan for their future whether with or without State support such as that provided under the Scheme to Support National Organisations.
This week blogger Lucina Russell shares her experience of public and private health insurance. This business of Public v Private has intrigued me since I read the Brian Friel play 'Philadelphia Here I Come', in secondary school. The play illustrates the conflict between Public and Private Gar's thoughts and actions, through the reveal of his past experience, present feelings and future fantasies. This has absolutely nothing to do with the topic of Health Insurance, but it makes me look well educated, or at least shows that I have a good memory … It was around that age that my mother started hammering home the 'Essential Tips for Being Grown Up'. One of the best pieces of advice she gave me was not to say bad things on your friends' boyfriends if they split up, in case they got back together again. I should have listened ! Another piece of advice was to get Private Health Insurance as soon as I could. Once I had a steady income, I got the insurance in place. It made me feel very grown up and secure. I had a twin pregnancy 7 years ago and forked out €3,000 on top of my policy for the care that I got. I must say, I had top class treatment, but if I did it all over again, I'd prefer to spend the money on something else … A three grand shopping spree sounds rather appealing. Four years ago after a very scary weekend with blurred vision and terrible headaches, an optomologist told me that I had Optic Neuritis. She referred me onto a Neurologist and made an appointment for an MRI. My MRI appointment was four days later, the Neurologist appointment for a fortnight later. I went home to wait. In the meantime, I was very sick. The headaches persisted, I had constant nausea and my eye closed with the strain of the blurring. My young children wanted to climb all over me, but I wasn't able for them. In the end, I just couldn't wait any longer and went to A&E in the private hospital, where my appointment was scheduled two weeks later. After spending €350 on blood tests and a few hours monitoring, I was told that I should go home and wait. They said they couldn't do anything without the MRI results. I asked if they could do them there and then to speed up the process. It would cost another €700 (at least). There was no guarantee that they would then admit me. So I went home, with a heavy heart and an empty wallet. I had my MRI, as scheduled a few days later. A friend suggested that I get a referral letter from my GP and to head for A&E in Beaumont Hospital. That's what I did. After a rather unpleasant and almost surreal night on a chair in a packed A&E Department, I was admitted to the Neurology ward the following morning, had a lumbar puncture done and started a five day course of IV steroids. The care was super. I felt listened to and my opinions and fragile state respected. I asked the staff what difference my Private Health care made to the care that I received. The reply was 'none'. Basically, if you are sick enough to be in a Neurology ward, you're in. I found that the aftercare available to all MS patients in Beaumont is equally good. I particularly like the telephone service, where you can phone an MS nurse and just have a chat. I had a further health scare earlier this year, which involved a Fast Track trip through the Breast Check unit in St James's Hospital. While frightened by the speed in which the tests took place, I was very impressed by the rigors of the tests and the level of communication from the medical team. Thankfully, all was well, but either way, I felt that I would receive the best care available. Family members had similar experiences positive experiences on the oncology and cardiac services, again all through the public system. I don't consider these services as 'free of charge' though. Isn't that why we pay hefty taxes? When the subject of the benefits of private insurance is discussed, elective surgery is often mentioned, for operations such as a hip replacement. An elderly relation of mine has a hip replacement recently, but only after a long and painful summer of injections into her knee by a private consultant, who didn't associate the pain in her knee with her hip. So it seems that private hospitals make mistakes too. Furthermore, when she has a heart attack after the surgery, she was rushed to the neighbouring public hospital by for treatment. As a result of these experiences, I've been thinking long and hard about the benefit of private health insurance. I listen to the media, talking about a public health system in shambles. I know about the patients sleeping on hospital trolleys. I remembered my mother's advice. I considered my long term health needs. I thought about my ever decreasing bank balance. In the end, I cancelled my health insurance policy. Just please don't tell me Ma!
DFI Calls On Government to Restore SSNO Funding to Disability Organisations The Disability Federation of Ireland (DFI) today called on Government to restore €1.2 million in funding lost to 26 disability organisations before the commencement of summer recess in the Oireachtas tomorrow. 26 disability organisations - including MS Ireland - saw their funding through the Scheme to Support National Organisations (SSNO), run by the Department of the Environment, Community and Local Government, revoked on 30th June. Last night, the Minister of State with responsibility for the implementation of the National Disability Strategy (NDS), Kathleen Lynch, confirmed that she was not advised of this development. Furthermore, following yesterday’s designation of responsibilities to Ministers of State, Minister Lynch is no longer assigned to the Department of Justice and Equality, where responsibility for the whole-of-government implementation of the NDS rests. She is now solely attached to the Department of Health, where her portfolio includes disability, mental health and primary care. Chief Executive of DFI, John Dolan, explained, “This demonstrates the evident confusion as to where and with whom responsibility for the NDS lies: this needs to be cleared up immediately. People with disabilities are very concerned with any signal that the SSNO funding and other disability issues are to be dealt with through a Minister assigned only to Health”. He continued, “There is a continuing lack of priority and understanding at the centre of Government around the core reason for the NDS, namely to ensure that people with disabilities can fully participate across all areas of public life and in the community. DFI has advocated for some time for Government to assign a Senior Minister for Disability Inclusion. Not alone have the Taoiseach and Tánaiste failed to do this, but the appointment of the Minister for State adds more confusion and confirms that Government is not competently dealing with its ‘priority’ social justice issue”. DFI is calling on all T.D.s and Senators to show their solidarity with disabled people and their families, who are now being adversely affected by this withdrawal of funding, and to support the determined implementation of the NDS. They can demonstrate this today by attending the Private Members Motion on disability issues, presented by Deputy Finian McGrath on behalf of the Technical Group, resuming at 7.30pm this evening. Mr Dolan concluded, “People with disabilities and their families need to be assured that, by the time the Dáil closes for summer recess tomorrow, this vital funding to their organisations will be back in place. We are urging Government to reinstate the €1.2 million funding to the 26 disability organisations who lost it, and to take immediate action to protect and invest in the future of people with disabilities in Ireland”. MS Ireland is an active member of the DFI and supports this call for SSNO funding to be restored.
Official charity partner with the Helly Hansen Killarney Adventure Race Irelands biggest adventure race, the Helly Hansen Killarney Adventure Race, have partnered with MS Ireland as its charity partner for this year’s much anticipated race. With the success of last year’s adventure race in Killarney which saw over 2,000 people running, kayaking and cycling around Killarney lakes and mountains, it is set to be another sell out. Ava Battles, Chief Executive of MS Ireland, said at the launch night, ‘’We are delighted to be involved with the Helly Hansen Killarney Adventure Race, and we hope it will raise awareness of Multiple Sclerosis and generate much needed funding through sponsorship. Over 8,000 Irish people and many thousands more who share their lives live with MS, the most common disabling neurological condition in the country. We know that increased physical exercise can significantly reduce some MS symptoms so we would encourage people to sign up now and get active for MS.” Liam Delahunty is a dad of four from Waterford and was diagnosed with MS in 2007. He has decided over the next 18 months he will take part in 24 adventure races around Ireland. Liam says, “I just want to show other people with MS and the public that MS can still mean an active life. Exercise has changed the way MS affects me and changed my attitude to everything. I’m daring to change perception and hope others join in along the way to take part in Killarney! The challenge is not just for the grizzly hard core adventurers as there are different route options to suit all levels of fitness. If you are looking for a Challenge in 2014 then the Killarney Adventure Race is one adventure you won’t want to miss!” The adventure race events are organized by Killarney based company Elite Event Management. Race organizer Oliver Kirwan said, “Liam’s story is inspirational and we are encouraging everyone who takes part to raise money for MS Ireland. Don’t forget that there is a relay team option so you can share the challenge with friends! We encourage everyone to make this your goal and support Liam in 2014. Do you want to join team MS Ireland? Team MS Ireland participants get €10 off race entry! Why not register your interest for the Helly Hansen Killarney Adventure Race
Disability organisations speak out against cuts Each of the 26 disability organisations - including MS Ireland - who applied for the Scheme to Support National Organisations (SSNO) have had their funding denied. The annual Department of the Environment scheme provides essential funding to charities nationwide. The Neurological Alliance of Ireland (NAI), the umbrella organisation representing people with neurological conditions, and each of their 11 members also lost their funding. This is vital funding and as a result, the NAI now faces having to cease operations after losing its core funding. Speaking on Newstalk this morning Mags Rogers of the NAI said: "If there had been a deliberate attempt to remove people with neurological conditions from the public agenda, this couldn't have been done more effectively. Not only have all the neurological charities failed to secure funding under this scheme. The only representative organisation [NAI] will have to cease operation. Neurological conditions are the most significant cause of adult disability. We would support a minister for disability who would recognise that people with disabilities are the most disadvantaged in Irish society, particularly those with neurological conditions like MS, stroke, epilepsy and there are 7000,000 people with neurological conditions in Ireland." In the same interview Alexis Donnelly noted the economic impact of this decision: "If you’re arguing on the basis of economics, that these cuts are the way to go, it is demonstrably inefficient. These organisations are providing services that the State isn’t and they're doing it probably better, and cheaper certainly. If you cut these organisations, these 700,000 people with neurological conditions will at some stage - undoubtedly - need the help of these organisations." The Disability Federation of Ireland (DFI) have sent a letter to Taoiseach Enda Kenny calling for the funding to be reinstated. John Dolan, CEO DFI, says: "This is an issue which requires immediate and resolute action: these organisations and the thousands of people they support have been left stranded and struggling following the retraction of this funding. With both the Cabinet reshuffle and the imminent summer recess set to bear an impact on the work of the Government, it is imperative that this vital matter is not allowed to slip between the cracks." MS Ireland is a member of both the NAI and the DFI. We fully support each organisation's campaign to highlight this extreme cut to funding and we will work together to ensure the needs of people with MS are addressed. More information Mags Rogers (NAI) and MS Ireland advocate Alexis Donnelly interviewed on Newstalk 14/07 Irish Independent article 10/07
09:00 - 18:00
09:00 - 18:00
12:00 - 13:00
15:00 - 17:30
13:30 - 15:00
10:00 - 19:00
09:00 - 13:00
North Dublin A...
15:00 - 23:00
13:30 - 15:00