The Multiple Sclerosis Society of Ireland ("MS Ireland") is a charity, registered in Ireland as CHY05365, with its head office at 80 Northumberland Road, Dublin, Ireland, email: email@example.com.
You should know what information we collect and how we use it.
The objectives for which MS Ireland exists are:
· to facilitate people with MS to control their lives and environment, to live with dignity and participate in the community,
· to provide support for the families and carers of people with MS,
· to co-operate with the medical, scientific, social and caring professions to promote scientific research into the cause of, cure for and management of MS, and the alleviation of medical and social symptoms,
· to exchange and disseminate information relating to MS, and
· to provide an identifiable focal point by developing an efficient, effective and caring organisation to serve the needs of people with MS.
MS IRELAND is committed to protecting the privacy of people who use our services, employment candidates and current employees, contacts, fundraisers, business partners, and other third parties we deal with, such as family members.
This Privacy Statement details how MS IRELAND collects, uses, discloses, transfers and stores your personal information. It applies to personal data about you that we collect, use and otherwise process in connection with your relationship with MS IRELAND.
MS IRELAND is a nationwide charity that operates from its headquarters in Northumberland Road in Dublin, the MS Care Centre at 65 Bushy Park Road, Rathgar, Dublin 6, and through employed regional workers and offices. MS IRELAND also has a network of Voluntary Branches, each of which processes personal data submitted to it directly and/or through a client's consent when he or she has ticked the "I would like my details sent to the nearest Voluntary Branch" on MS IRELAND's Lifetime Membership Form or the MS Care Centre Contract of Care. Any personal information processed by MS IRELAND in connection with this Privacy Statement is ultimately controlled by a MS IRELAND as the "data controller" as provided for under the General Data Protection Regulation ("GDPR"), the Irish Data Protection Acts, 1988 to 2018, and the Data Protection Commission (DPC) Guideline for the Charity and Voluntary Sector.
The elected Secretary of each Voluntary Branch is the controller of the personal data processed in that branch.
You may request information about the personal data that MS IRELAND holds about you by emailing us at firstname.lastname@example.org or writing to us at 80 Northumberland Road, Dublin, Ireland.
Please note that throughout this Privacy Notice the word "website" refers to https://www.ms-society.ie.
1. INFORMATION COLLECTED BY USING MS IRELAND WEBSITE
1.1 You are not required to provide any personal information to access public areas of MS IRELAND's website.
1.2 However, when you visit the MS IRELAND website we record your IP address and details of your visit, including the date and time. An IP address is an assigned number, similar to a telephone number, which allows your computer to communicate over the internet. In addition to your IP address the following technical information will also be collected: your login information, browser type and version, time zone setting, browser plug-in types and versions, operating system and platform, information about your visit including the full Uniform Resource Locators (URL), clickstream to, through and from the website (including date and time), pages viewed, download errors, page interaction information (such as scrolling clicks) and methods used to browse away from the website.
1.3 MS IRELAND uses this IP information for its legitimate interests to compile statistical data on the use of our website and to track how users navigate through our website in order to enable us to evaluate and improve.
1.4 Personal information such as names, addresses, email addresses, telephone numbers, and other personal data relating to services that we are providing to you will only be collected from users of the website who voluntarily input such information.
1.5 Focus Limited website designer in Bristol, England, acts as a data processor for MS Ireland in relation to the MS IRELAND website. In this capacity, Focus has sight of data regarding: donations, staff, the personal information of clients (including names, addresses, email addresses), enquiries and memberships.
2. CONTACT SALESFORCE DATABASE
2.1 We may retain information you have provided us with in MS IRELAND's contact database. Information that we typically hold in our database includes:
2.1.1 your contact information, including your name; job title; organisation's name; address; phone number(s), email address(es) and other identification information;
2.1.2 the area(s) that you have an interest in,
2.1.3 historical fundraising activity for MS IRELAND.
2.2 Once your details are included in MS IRELAND's contact database we may also record details of any:
2.2.1 MS IRELAND's mailing lists you have subscribed to or unsubscribed from;
2.2.2 mailings (including services updates and event invitations) we have sent you;
2.2.3 hyperlinks you have clicked in any mailing that we have sent you;
2.2.4 meetings we have held with you;
2.2.5 event invitations you have replied to; and
2.2.6 events you have attended.
2.2.7 your care records.
2.3 From time to time we may ask you by email to review your contact details and preferences, and update them as necessary. This not only helps us to keep the contact information we hold about you up-to-date, it also ensures that we only send you information that you have requested and/or is relevant to you.
3. INTERACTIONS WITH MS IRELAND
We retain personal information relating to interactions between MS IRELAND and people who use our services, clients, job applicants and current employees, contacts and business partners, including information relating to the services that we provide. We only retain information that is necessary for the purposes set out in this Privacy Statement.
4. PROCESSING OF YOUR PERSONAL INFORMATION
4.1 MS IRELAND, in the MS Care Centre, the regional offices, and throughout its network of Volunteer Branches, will only collect and process personal information where it has a legal basis for doing so. This includes where MS IRELAND is providing a service to you or fulfilling a Care Centre or Regional Office contract with you, where MS IRELAND has to comply with a legal duty, where you consent to the collection and use, where MS IRELAND has a legitimate interest in collecting and processing the personal information, or where the processing is necessary in the public interest. When personal information is processed, the basis of processing will be in accordance with relevant Irish and EU data privacy laws, our legal obligations and to meet our information security requirements.
4.2 MS IRELAND uses personal information which we have collected from you in order to:
4.2.1 provide you with a more tailored and effective service and/or care;
4.2.2 perform analysis aimed at improving our products, services and technologies for people with MS;
4.2.3 communicate with you through certain mandatory service communications such as welcome letters, appointment reminders and our terms and conditions;
4.2.4 communicate with you in connection with any services that we are providing to you and otherwise perform the services for you that you have engaged us to provide;
4.2.5 ensure compliance with regulatory requirements and applicable law;
4.2.6 provide updates and newsletters, including our MS News magazine by mail and our electronic newsletter, and invitations to events and meetings;
4.2.7 carry out administrative purposes (including within the MS IRELAND regional offices and the network of Voluntary Branches), which may include, for example, accounting and billing, auditing and identification checking;
4.2.8 undertake systems testing, maintenance and development in order to ensure network and information security;
4.2.9 to let you know ways you can get involved in our fundraising and campaigns;
4.2.10 when you are making a donation, registering for a campaign or event, as appropriate, you may be asked to provide personal details such as name, email address, postal address, phone number or payment information as needed;
4.2.11 prevent fraud; and
4.2.12 market our services and products to you where MS IRELAND has a legitimate interest or you have consented to us doing so and in accordance with your preferences.
4.3 MS IRELAND will only collect, use and otherwise process information revealing racial or ethnic origin, political opinions, religious beliefs or relating to your health or sexual orientation or otherwise which is treated by applicable data protection laws as a "sensitive" or "special" category of personal information, where and only to the extent that you have given your explicit consent unless we are otherwise permitted or required to collect, use and process such information under applicable data protection laws, including but not limited to where this is necessary in connection with providing our agreed services to you.
4.4 Any data collection that is optional will be made clear to you. However MS IRELAND may need to collect and process personal information for certain legal compliance purposes or in order to perform certain services for you, including compliance with legal requirements relating to our anti-fraud, anti-money laundering or 'know your customer' obligations. If you choose not to give us this personal information then it may delay or prevent MS IRELAND from meeting MS IRELAND's obligations or it may mean that MS IRELAND cannot perform certain services for you. MS IRELAND will advise you if this is the case.
5. MARKETING and INFORMATION COMMUNICATIONS by MS IRELAND
5.1 We may wish to use the personal information that we collect about you to provide you with relevant marketing communications. This may include sending tailored direct marketing and information e-mails and other communications relating to our services or those of our MS IRELAND regional offices or Voluntary Braches, and sending you invitations to seminars and other events related to the care of yourself or your family member.
5.2 We shall only send such marketing communications to you to the extent that doing so is in the legitimate business interests of MS IRELAND or where you have consented to us doing so. As set out in the Data Subjects Rights table below, you may withdraw that consent at any time by contacting us at email@example.com. In addition, each electronic communication that you receive shall have a very clear "unsubscribe" option, which will allow you to stop receiving similar communications in the future.
6. EXCHANGE OF INFORMATION
6.1 MS IRELAND shares data between our regional offices and our Voluntary Branches, where necessary, for the purposes outlined in this Privacy Statement. MS IRELAND ensures that your personal information is shared in accordance with applicable data protection laws, at all times providing protection to your personal information and your rights.
7.1 MS IRELAND has relationships with third parties in order to provide services for people with MS, such as medical professionals. In some instances we may disclose your personal information to third parties where this is necessary to perform the services for which you have engaged MS IRELAND or otherwise in furtherance of an outsourcing or other data processing arrangement. In those circumstances MS IRELAND will ensure that the third party is contractually bound to only process personal information in accordance with applicable data protection laws and with MS IRELAND's specific instructions and requirements, and at all times in a manner that protects your rights under applicable data protection laws. Our suppliers and service providers will be required to meet our standards on processing information and security. The information we provide them, including your information, will only be provided in connection with the performance of their function. They will not be permitted to use your information for any purposes other than those outlined in this Privacy Statement.
7.2 In relation to any other third parties, MS IRELAND will only disclose or transfer your information where you have given your consent or where we are required to do so by law or other regulatory code or practice.
7. TRANSFER OF INFORMATION ABROAD
8.1 In very rare circumstances, personal data may be transferred to or accessed from countries whose laws provide a level of protection for personal data, not always equivalent to the level of protection that may be provided in your own country. In particular if you are located inside the European Economic Area ("EEA") your personal information may be transferred to a country outside of the EEA.
8.2 MS IRELAND ensures that cross border transfers comply with all relevant laws and regulations and in addition, we enforce the highest privacy and data management standards across all our offices through MS IRELAND Data Protection Policy. A copy of that policy may be obtained by contacting MS IRELAND at firstname.lastname@example.org.
8.3.1 you have expressly consented to the transfer of personal information;
8.3.2 the transfer is necessary for the performance of the services for which MS IRELAND has been engaged or the conclusion or performance of a contract concluded in your interests; or
8.3.3 the transfer is otherwise permitted by applicable data protection laws,
MS IRELAND will only transfer your personal information to a country that is deemed to have an adequate level of protection under the applicable data protection law or otherwise where MS IRELAND has put in place adequate safeguards to protect the personal information. In particular where MS IRELAND sends your personal information outside of the EEA, MS IRELAND shall only do so where the recipient of the information is subject to:
8.3.4 binding corporate rules;
8.3.5 standard data protection clauses approved under applicable law;
8.3.6 an approved code of conduct; or
8.3.7 an approved certification mechanism.
8.4 Further details on the safeguards adopted by MS IRELAND may be obtained by contacting MS IRELAND at email@example.com.
8. DATA RETENTION
MS IRELAND shall only retain your personal information for so long as there is a reasonable need to retain the information for the purposes set out in this Privacy Statement. Further details on MS IRELAND's policy in relation to retention periods can be found in our Record Retention Policy. A copy of that policy may be obtained by contacting MS IRELAND at firstname.lastname@example.org.
The MS Care Centre is registered as a provider by the Health Information and Quality Authority (HIQA) and complies with HIQA's Information Management Standards for National Health and Social Care Data Collections.
9. PROTECTION OF YOUR PERSONAL DATA
MS IRELAND is committed to protecting the security of your personal information. We use a variety of security technologies and procedures to help protect your personal information from unauthorized access, use, or disclosure, across all of our computer systems, networks, website, mobile phones, regional offices and Voluntary Branches.
Data Subject Rights
You have rights in respect of the personal data that we collect and process concerning you.
You are entitled to details concerning the processing of your personal data. This includes details of the data being processed, the purposes of the processing, any recipients of your data, the period for which the information is processed, the source of the information, any international transfers of the information and how we protect it. You may also request details of any automated decision making, including profiling, of your personal data.
You are entitled to a copy of the personal data we process about you.
You are entitled to have any incomplete and inaccurate personal information held by us corrected on request.
Right to be Forgotten
In some cases, you may request to have your personal data erased where the data is no longer necessary for the purposes for which it was collected and/or processed or you withdraw consent to our use of it.
We may advise that we must continue processing your data if there are grounds other than your consent for processing your data, where processing is in compliance with a legal obligation, for reasons of public interest or for the exercise or defense of legal claims.
You can ask us to restrict the processing of data MS IRELAND holds about you if you dispute the accuracy of the data we process about you or if you have objected to the grounds upon which we process the information.
Where you have asked us to restrict processing the information we shall only hold, process and erase the information as permitted by you or as permitted by the Data Protection Acts, 1988 to 2018 or the GDPR. We will advise you if we do not agree with your request.
Where processing of your data is carried out by automatic means, you are entitled to receive a copy of that information in a machine-readable format and for that to be provided to another data controller, where technically possible.
You may object to MS IRELAND collecting, using and otherwise processing your personal data where the basis for the processing is MS IRELAND's legitimate interests or the processing is in the public interest. In such circumstances we shall cease processing your personal information unless we are legitimately processing the information on a different basis, there are compelling legitimate grounds for continuing to process the personal information, or we are otherwise permitted to under applicable data protection laws, which MS IRELAND will so advise.
Where you have given us consent to process your personal data for any of the purposes outlined in this Privacy Statement and we have no other legal basis for processing, you shall be entitled to withdraw that consent.
Right to Complain
If you have concerns or complaints regarding this Privacy Statement or the manner in which MS IRELAND collects, uses and otherwise processes your personal data we would like to hear from you.
If you consider that we have not processed your data according to these rights and we have not addressed your complaint in this regard, you are entitled to lodge a complaint in Ireland to the Data Protection Commission at www.dataprotection.ie.
This Privacy Statement may be updated from time to time.
The current version of this Privacy Statement can be found on the MS IRELAND website or may otherwise be requested at email@example.com.
This policy aims to inform MS Ireland website users that cookies are used on the website and how to go about opting out of cookie usage.
This policy applies to all visitors to the MS Ireland website
Cookies are small text files that are stored on your computer by the websites that you visit. Cookies enable some information about your visit to be recorded and enable websites to recognise a user anonymously based on the information stored in the cookie.
Cookies can be either ‘session’ or ‘persistent’. Session cookies are only stored for the duration of usage of the site and are deleted once the browser is closed. Persistent cookies can remain on your computer for longer specified periods.
There are two types of cookies: First-party cookies that are set by the site you are visiting and Third-party cookies which are set by other sites that have features embedded on the site you are visiting – such as advertisements or YouTube videos.
We use the following local cookies:
• Google Analytics to track users as they navigate the website – these cookies are named: _utma, _utmt, _utmb, _utmc, _utmz
• AddThis – provides access to social sharing buttons for Facebook, Twitter, etc
• Cookies to allow use of the shopping cart and to process payments
We also use Third-party cookies:
• YouTube to embed video content into our site
• DoubleClick and Google Analytics to allow us to advertise and monitor performance on Google
Cookies can be controlled through the settings on your browser, use the link specific to the browser you use to get information on how to do this.
There are a variety of free tools available that you can use to block cookies to help protect your online privacy. These are listed here for information purposes and do not represent an endorsement of any particular product.
If you have any questions in relation to this Privacy Statement please contact us at firstname.lastname@example.org.
This week Willeke van Eeckhoutte delves into the universal experience of grieving after being diagnosed with multiple sclerosis. From the ever-popular denial to the stories we tell ourselves and to being present in your daily life, read on to discover how she found her way forward…. Nothing is as numbing to the soul as being diagnosed with an incurable illness like MS. When that illness is also progressive and affects your brain, spinal cord and optic nerves, you can safely call it a double whammy...and a bit! In 2002 I moved to Ireland, the country of my dreams. At work, strong friendships were formed from the get-go and family members visited regularly. I was also studying for a degree in Psychology and when I had time to spare, I travelled around Ireland during weekends and holidays. Life was hectic and good. Fast-forward to 2005. Five months after experiencing my first MS symptoms, I stepped into A&E with excruciating facial pain and fatigue. These symptoms invariably marred my days- there was no number a pain severity scale. My diagnosis followed soon after... it still feels as if it happened yesterday. I remember what I wore, what I said, what I forgot to ask... as well as staring in my neurologist’s eyes looking for reassurance. I also remember standing in the hallway outside the MS clinic, texting everyone, saying “I am OK! It’s MS but I am OK!” Denial had arrived. “The illness is mine, but the tragedy is theirs.” Third Star, 2010 Denial set in almost instantly. The visceral impact I thought would happen during the MS clinic, didn’t. When my neurologist said I would have to change my lifestyle, I thought, “What an odd thing to say to someone who just changed her lifestyle when I moved to Ireland.” “No can do!” I said afterwards to the friend who went to the hospital with me—and who I conveniently forgot to take into the consultation room with me. She later dragged me off to a fancy restaurant because in her own words, “I was so in denial!” Not facing up to the truth as a coping mechanism prevented me from going off the rails that day, so much so I was talking about the ‘D-thing’ in quite a matter-of-fact way. Family and friends were asking if I was OK as the lack of tears puzzled them. I asked them in return if they were OK because they seemed to make so much more of the diagnosis than I was. When I eventually went to bed that night, my thoughts were fragmented and skewed. I was happier knowing what was causing the maddening facial pain and relentless fatigue rather than being sad about the difficult journey ahead of me. I didn’t see the need to quit my job nor the urgency to throw my life around again. This was a stance I eventually had to review 4.5 years post-diagnosis. This was diagnosis-denial 1-on-1 For about five weeks, I said “I’m fine!” Non-acceptance would intervene when new symptoms arrived and trigeminal neuralgia went up a notch. It stopped me from thinking about all the implications of such a harsh diagnosis. Before denial dissipated, I still had a litany of questions that required answers I couldn’t find. I could be forgiven for not being even remotely aware that my body was in a slow process of relinquishing power and control? Did those glimmering lesions on my brain show up one day fully formed? Why, after just 2.5 years, did MS have to attack the life I had dreamt of? Please don’t tell me family and friends will walk out of my life because I’m “just not the same anymore”? Have I just lost the best part about myself? All the above went unanswered because the time and effort spent on finding the right answers by being negative were more energy-sapping than being positive was. Interferon side effects helped drip-feed reality into my consciousness. Its numbing effect lost its potency, but I finally understood that being in denial is the opposite of having hope. Hope was where I was headed and hope is where I live to this day. Check out Willeke’s blog Ireland, MS and Me
Apply now to become a Director We are currently seeking candidates including candidates with MS research or community development experience to go on to our panel of potential Board members. Members, Branches, Council, the Board and staff may propose candidates. All nominations must be proposed and seconded by Members. Nominations of retiring Board members seeking re-election must be submitted to the Nominations Committee. Other nominations may be submitted either directly to the Nominations Committee, or alternatively, under the provisions of Article 56 of MS Ireland’s Constitution, nominations may also be submitted directly to the Registered Office (MS Ireland’s National Office, 80 Northumberland Road, Dublin 4 D04 T856) and marked for the attention of the Company Secretary. The Nominating Committee will review all nominations, except those submitted to the Company Secretary under Article 56, and will recommend to the Board candidates to go forward for election by the Members at the AGM. Any Member nominated via Article 56 will have their candidacy put before the Members at the AGM. The Nominating Committee will take into account the range of skills necessary for board membership and where possible, the geographical spread, the gender balance, the experience and the qualifications of the candidates. All candidates must be in compliance with the requirements for Directors as set out in the Companies Act 2014, the Charities Act 2009 and MS Ireland’s Constitution and will be asked to sign a declaration to that effect. The Nominations Committee, on behalf of the Board, needs to be satisfied that no candidate, who legally cannot serve as a Board member, or who has been disqualified or restricted from being a Board member, is put before the Members at the AGM. Closing date for receipt of applications Applicants, wishing to apply for a position on the Board in September 2019, are invited to submit their application form by 5pm on Friday, 31st May 2019.
20th Annual General Meeting (59th AGM since MS Ireland’s foundation) Dear Member, In an effort to reduce costs and with the passing of our Constitution in 2016, we are now able to send AGM notices to you by email. However, we need your consent that you will access the accompanying AGM financial documentation on our website instead of by post. We will be contacting you by email or phone in the coming weeks to seek your agreement on this and to get your email address. Alternatively please complete the attached slip and return to Alice McKeon, MS Ireland, National Office, 80 Northumberland Road, Dublin 4.D04 T856 We would like to thank those members who have already consented to accessing the AGM financial documentation on our website. The AGM legal notice will be sent to each member by email (where we have an email address for you) or by post along with the next issue of MS News. The Annual General Meeting of the Multiple Sclerosis Society of Ireland, at which Board members are elected, normally takes place on the same weekend as the annual conference which this year is scheduled to take place on Saturday, 21st September in the Radisson Blu Hotel, Limerick (time to be confirmed). The results of the vote for the board vacancies and motions, if any, plus the council’s nomination to the board will be announced at the AGM. The procedures for motions and board nominations are listed hereunder. Every registered member is entitled to a vote. For those unable to attend the AGM, proxy papers will be available on our website three weeks prior to the AGM and must be returned to National Office, MS Ireland, 80 Northumberland Rd, Dublin 4 D04 T856 before 5pm on Thursday, 19th September 2019. Ava Battles Company Secretary Motions Any member or branch may forward a motion to the Governance Committee who will decide on their acceptability for putting before the AGM. Closing date for receipt of motions is Friday, 16th August 2019. Call for Board Members We are currently seeking candidates including candidates with MS research or community development experience to go on to our panel of potential Board members. Members, Branches, Council, the Board and staff may propose candidates. All nominations must be proposed and seconded by Members. Nominations of retiring Board members seeking re-election must be submitted to the Nominations Committee. Other nominations may be submitted either directly to the Nominations Committee, or alternatively, under the provisions of Article 56 of MS Ireland’s Constitution, nominations may also be submitted directly to the Registered Office (MS Ireland’s National Office, 80 Northumberland Road, Dublin 4 D04 T856) and marked for the attention of the Company Secretary. The Nominating Committee will review all nominations, except those submitted to the Company Secretary under Article 56, and will recommend to the Board candidates to go forward for election by the Members at the AGM. Any Member nominated via Article 56 will have their candidacy put before the Members at the AGM. The Nominating Committee will take into account the range of skills necessary for board membership and where possible, the geographical spread, the gender balance, the experience and the qualifications of the candidates. All candidates must be in compliance with the requirements for Directors as set out in the Companies Act 2014, the Charities Act 2009 and MS Ireland’s Constitution and will be asked to sign a declaration to that effect. The Nominations Committee, on behalf of the Board, needs to be satisfied that no candidate, who legally cannot serve as a Board member, or who has been disqualified or restricted from being a Board member, is put before the Members at the AGM. Closing date for receipt of applications Applicants, wishing to apply for a position on the Board in September 2019, are invited to submit their application form by 5pm on Friday, 31st May 2019.
This week we get to share in a conversation between two MS and Me bloggers, Fergal Hughes and Willeke van Eeckhoutte. Read on for their personal take on some of the issues MS brings to their lives. Life. It's tough. Life with MS is tougher than life without MS of course. That said, I doubt that any of us MSers would say our life is tougher than someone else’s...anyone else's, MS or no MS! “Walk a mile in someone else’s shoes” and all that. Still, MS does have more than its fair share of negative points and it gives us more than our fair share of ‘bad days’. With our new friendship, we (Willeke van Eeckhoutte and Fergal Hughes) find we enjoy convincing each other that it’s not all bad and that every cloud has a silver lining. REDUCED CAPABILITIES WvE: Life with MS put a big exclamation mark in my life... and I wasn’t having it! No more hillwalking or thinking of chasing cows in the middle of nowhere only to realise there is a bull just 150 metres ahead of me! FH: Even though some capabilities may have been taken from you, you just need to remind yourself that you can still do what you can do and, well, you'll keep doing it. The goalposts may have been moved – personally, what I now consider to be a major achievement is certainly different to what it was some years ago – but I’m pretty sure you have the confidence and strength to deal with it and adapt. CONCENTRATION FH: Me, I work as a software engineer. This is both brilliant and not so brilliant. My job requires that I sit down for 8 hours a day. This means there’s minimal call for me to be physical but it also means I get minimum chance to be mobile or to work the muscles. Also, my mind has to constantly be in tip-top condition … and with MS that can be a struggle. WvE: My experience is that lately, it seems that my concentration and memory have gone to tatters. My prospective memory especially has led to awkward situations because I agree to do certain tasks, but then I can’t remember that I had to remember to perform that task. The intention is there and unless I sticky-tape notes to every wall of the house, I often find myself apologising. FATIGUE WvE: This is no joke. It takes 100% true grit trying to stay awake for five minutes once I put my head on my pillow. Can you imagine having a relationship like this? I have to watch episodes of my favourite shows five or six times to see the whole 45-minute program! What’s your secret, Fergal? FH: Combatting fatigue is no easy matter, Willeke. I’ve found that a regular schedule for going to bed at a particular time every evening and getting up at roughly the same time every morning helps me … as long as I stick to it! As long as I give my body and mind the best possible chance, the closer to a ‘normal life’ I get. MY FUTURE FH: I'm a worrier. It's alright saying I live in the 'here and now’ but shouldn't I at least consider the worst possible future … so I'll be prepared for it if it did happen. WvE: As a great philosopher once said, ‘Don’t worry, be happy’. Kidding. But hey, always remember, you can’t control the future. You can maybe have an effect on today and this week but let the long-term future take care of itself. A BURDEN ON OTHERS WvE: I feel shut out when people tell me I don’t need to worry about certain news, that I have enough on my mind already. I tell them again and again that they don’t need to worry about what I live with, but I cannot convince them. Backup or tips needed here, Fergal! FH: No one wants to feel like a burden on family or friends. But come on, Willeke, we can’t control how others feel. And anyway, we might be wrong! I KNEW I WAS DEPRESSED BUT WAS AFRAID OF REACHING OUT FH: I waited too long to get help and felt there wasn’t much support available in my community. When I eventually found a therapist, it was expensive enough for the amount of time I was given. WvE: I’m sorry to hear that Fergal. People with MS need more readily available access to mental health services. Once I opened up, I felt relief knowing I was not the only one. Therapists might have group sessions also for ‘people with chronic illnesses’.
Minister for Health publishes Sláintecare Action Plan 2019 outlining approach for delivery of Sláintecare and milestones to be achieved by the end of the year Minister for Health Simon Harris TD has today published the Sláintecare Action Plan 2019, outlining the project management structures and governance approach for the 10-year implementation of Sláintecare and the actions and milestones for 2019. The Action Plan, developed by the Sláintecare Programme Implementation Office, is a fundamental enabler in the delivery of the Sláintecare vision for reformed health and social care services in Ireland. Minister Harris said "Sláintecare will deliver a health and social care service that meets the needs of our population and attracts and retains the very best healthcare professionals, managers and staff. Our core objective is to shift the majority of care from the acute to the community setting to bring care closer to home for service users. “This will help us reduce waiting lists and waiting times and ultimately meet our goal of improving population health. Over a ten-year period, Sláintecare will deliver a service that offers the right care, in the right place, at the right time. “To implement this ambitious reform programme, it is essential that we establish a clear, accountable and structured annual plan for delivery, and the 2019 Action Plan that I am publishing today is just that. It is a detailed and comprehensive plan for 2019 which firmly establishes a programmatic approach to the delivery of the Sláintecare Strategy. “As the Action Plan sets out, considerable work is already underway to deliver on the commitments made in the Sláintecare Implementation Strategy. Earlier this year, my Department announced the appointment of eight new members of the HSE Board, one of the key recommendations of Sláintecare. Enhancing governance and accountability in the health and social care service is integral to Sláintecare reform and the new HSE Board will work with the HSE to implement Sláintecare.” Executive Director of the Sláintecare Programme Implementation Office, Laura Magahy said “The 2019 Action Plan uses a Citizen Care Masterplan Framework to underpin the project delivery of the very ambitious Sláintecare Strategy. It is essential that all parts of the health and social care system are involved in Sláintecare as these actions will be delivered through and with these partners. "2019 will see us putting in place some essential building blocks to ensure that by the end of the reform programme, the right care is being delivered in the right place, at the right time.” Anne O’Connor, Interim Director General of the HSE, said “This Plan sets out the key activities that will guide the reform of the health services in 2019 and beyond. The HSE looks forward to working in partnership with our stakeholders in order to deliver on these important actions.” The publication of the Action Plan follows the second meeting of the Sláintecare Implementation Advisory Council (SIAC), chaired by Dr Tom Keane, which met on Wednesday 27th February. Sláintecare Implementation Advisory Council Chair, Dr Tom Keane, said: “This Action Plan is deeply rooted in the original vision set out by the Joint Oireachtas Committee on the Future of Healthcare, and one which has been informed by stakeholders from across the health and social care service. "As I know from experience, implementation does not happen overnight. However, with the keen focus on structured delivery that this Action Plan presents, I am confident that we have identified and sequenced the first essential steps needed to create the foundations for an Irish health and social care service that, in due course, will provide the right service, in the right place, at the right time”. The key Sláintecare actions to be delivered in 2019 include the following: Workstream 1: Service Re-design and Supporting Infrastructure Scale projects to improve the management of chronic disease and older people’s services so that care can be provided at or close to home Plan bed and diagnostic capacity to meet the needs of our growing population Prototype a Citizen Health Portal, continue EHR roll-out and explore scale-up of telehealth solutions Workstream 2: Safe Care, Coordinated Governance and Value for Money Define and agree a new organisational and operational structure for the future reconfigured health and social care service, including respective roles of the Department of Health, the HSE and regional and community organisations Develop a roadmap and policy proposals for how to provide universal services at no or low cost to the patient/service user Review the recommendations from the Independent Review examining the removal of private practice from public acute hospitals Progress the Patient Safety Bill Workstream 3: Teams of the Future Engage with the education sector and training bodies to agree new ways of training multidisciplinary teams Implement the recommendations in the Strategic Review of Medical Training and Career Structures Identify projects which support staff to work to the full scope of their licence to ensure that patients are seen at the lowest level of complexity possible Workstream 4: Sharing Progress Commence the development of an evaluation and reporting framework Launch the €20m Sláintecare Integration Fund for 2019 to test, learn from and support the implementation of new models of integrated care Roll-out a Citizen and Staff Engagement and Empowerment Programme which will be scaled and sustained throughout the 10-year implementation period Read the full Sláintecare Action Plan 2019 on the Department of Health website.
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