While we are currently marking the 10th anniversary of MS & Me, this March marks the 18th anniversary of Trevis L Gleason’s Life with Multiple Sclerosis blog for EverydayHealth.com. He began writing after a difficult few years post diagnosis. Much has changed over that period – both how and what Gleason writes – and this book is a collection of all the knowledge he’s garnered since those early days. Offered up in a linear fashion, the book guides readers through the ever-changing personal, professional, and medical minefields associated with a life-altering chronic condition.
Trevis says the following about the book: “It is one part primer, one part handbook, one part pocket translator, and 100% an essential field guide for navigating the challenges of living with chronic illness.”
He adds that it would be remiss not to mention the significant efforts of a woman he calls his “MS Sister” – and who many of you will know from this blog – Emma Rogan, who worked with him on the book for nearly two years to get it to where it is today.
Trevis says he is also incredibly humbled by the words of Dr Tim Coetzee, PhD - Chief Advocacy, Services & Science Officer for the National MS Society, who wrote a lovely foreword to Living Well with Multiple Sclerosis.
We at MS Ireland are over the moon for Trevis and Emma, who have been bloggers with us since the beginning.
We hope that our MS community finds their wonderful book helpful. Trevis and Emma are stepping aside from their current roles as members of our editorial team and deserve a break after all the work that has gone into this book.
We wish them nothing but success with this new venture and whatever comes next for them both.
Living Well with Multiple Sclerosis is published by Coffeetown Press and is available internationally through Ingram, many online booksellers and when requested through your local bookshop.
Some of the wonderful international praise for Living Well with Multiple Sclerosis
“Delightful, funny, insightful, poignant, and compelling. Living Well with Multiple Sclerosis should be mandatory reading for every patient dealing with any chronic health condition and for the doctors treating them.” Dr Michelle Toshima, PhD - The Multiple Sclerosis Center at Swedish Neuroscience Institute
“Trevis is bold, insightful, and sensitive as he explores the taboo and often neglected subjects that impact the survival of people living with MS.” Barbara (Bobbie) Severson - Cpt, USAF, Ret. MSN, ARNP-C, MSCN
“An open, honest, and real account of life with MS. It’s confronting, uplifting, challenging, emotional and all things in between. A great read.” Trishna Bharadia - MS patient advocate MS Society UK
“Trevis paints a picture that gives readers an inside look at what it’s like to live and thrive with MS.” Dr. Pamela Valentine - President & Chief Executive Officer, MS Society of Canada
“It’s like spending time with your new warm, wise, and funny best friend. You’ll feel as though you are hanging out while learning what it means to live and love with multiple sclerosis.” Sara Loud - Chief Executive Officer, Accelerated Cure Project
“A vivid diary of a personal journey through multiple sclerosis. While every journey is different, Trevis has managed to bring us into the shared experience of people with chronic illness.” Dr Paola Zaratan P.hD -Director of Scientific Research. Italian Multiple Sclerosis Society
“You don’t have to have MS to appreciate Trevis Gleason’s writings. While he’s never less than honest about the hard parts, he also manages to keep it light and find the humor in what he’s going through.” Ingrid Strauch - Editor, Everyday Health
“Trevis touches on the core themes that are at the heart of communities of people living with chronic conditions: solidarity, agency, knowledge and education, discrimination and stigma.” Nicola Bedlington - Former Secretary General, European Patients’ Forum
“The description of an individual life path that can give people living with chronic illness both courage and hope.” Herbert Temmes – President, European Multiple Sclerosis Platform
“This book gives context and life to the words, to the questions and to the fears that so many of us living with a chronic illness are too afraid to speak of or too embarrassed to ask.” Ciara O’Meara - MHSc, M.A.T., BNS, RNT, RGN
“This is the book that newly-diagnosed as well as long-haul multiple sclerosis patients and their families should have on their bookshelves.” Meredith O’Brien – Author, Uncomfortably Numb: A Memoir
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