My MS My Needs Findings
Read the full report also here https://www.ms-society.ie/research/latest-news-research/ms-ireland-unveils-findings-my-ms-my-needs-survey
MS Ireland launched the results of the comprehensive “My MS My Needs” survey which highlights the needs and experiences of people living with Multiple Sclerosis (MS) in Ireland. This pivotal research, which builds on a similar survey conducted in 2016, provides critical insights into the challenges faced by the MS community and offers evidence-based recommendations to enhance support and services.
Key Insights from the Survey:
- Neurologist Appointments: 19% of respondents waited more than six months for their last neurologist appointment.
- MRI Scans: 68% had an MRI in the past year, with 19% waiting over six months.
- Travel for Care: 41% travel over an hour (one-way) to see their neurologist.
- Neurorehabilitation: Less than 2% accessed services, and 60% are unaware of them.
- Care and Support: 52% receive help from family/friends; 35% need over 31 hours of care weekly, with 8% requiring full-time care.
- Financial Strain: Nearly 20% are struggling financially.