The Polish MS Society marked World MS Day 2013 by organising an event - at the headquarters of the Polish Ombudsman - on matters concerning people with Multiple Sclerosis, particularly young people with MS.
The special guest for the event in Warsaw was MS Ireland's Policy and Information Officer, European MS Platform’s Executive Committee member and Youth Representative, Emma Rogan. She spoke about her experiences and how important it is for young people living with multiple sclerosis to work everyday for good health. "It is a vital for young people dealing with the condition get together, have fun and share information. Today we shared the words that inspire and strengthen us and encourage us in our lives.”
View video about the day in Polish and English
http://www.youtube.com/watch?feature=player_embedded&v=q_2_pCbr58c
Poland has a different healthcare system to Ireland. However, it is similar in that spending on healthcare is relatively low. A limited number of people receive treatment at any one time. After five years access is transferred to the next person on the waiting list. So, if a person is on Interferon for 2 years and is then transferred to another drug, it can only be for three years. However, MS does not come and go; the condition lasts a life-time.
One of the young people at the event explained how she has to fundraise to afford to pay for her infusion of Tysabri. Previously, she was using a wheelchair and was severely debilitated with limited access to the world. The treatment has been wonderful for her in that she is back working, can attend events such as the Warsaw WMSD and is living well. For the treatment, she has to pay approximately €2,000 per month; the average salary in Poland is €800 (equivalent). Unfortunately, instead of being able to enjoy her health, she spends a lot of her time trying to fundraise.
For more information on the situation for people with MS in Europe, please check out the EMSP Under Pressure website