MS Ireland has produced a Briefing Document and Position Paper on the need to establish an MS Patient Registry in Ireland.
The paper outlines:
- What patient registries are
- Why registries are important
- Current patient registries in Ireland
- MS registries internationally
- MS Ireland’s position and recommendations
The paper can be accessed here
This document has been prepared by Harriet Doig, Information, Advocacy & Research Officer, MS Ireland. Questions and comments can be directed to harrietd@ms-society.ie