People affected by MS have been at the heart of the International Progressive MS Alliance since its beginning. In fact, a critical element to the Alliance’s strategy is to amplify the voices and roles of people affected by MS.
The Alliance’s people affected by MS engagement coordination team participates in all aspects of the Alliance, including reviewing research grant applications. In order to ensure that people affected by MS stay at the forefront of Alliance-funded research, the team decided to develop and implement a set of principles on the engagement of people affected by MS in Alliance research, which could also serve as a model for MS research worldwide.
This webcast will dive into the Principles of Patient Engagement and how the Alliance is implementing them as a requirement of Alliance-funded research. The panel includes people affected by MS who were involved in the development of these principles, the head of clinical trials at the MS Society in the United Kingdom, and an investigator who is putting the principles into action in his current research project. Register for the global webcast here
About the International Progressive MS Alliance
The International Progressive MS Alliance is a first-of-its-kind global research network aimed at accelerating the development of new, effective treatments for progressive MS. We are rallying the world through an unprecedented collaboration of MS organisations, researchers, healthcare professionals, pharmaceutical companies, foundations, donors and people affected by MS. Our promise is more than hope; it is progress.