So, here they are.
Tears caused by MS-related neuropathic pain in my left side.
After 18 years of fighting nerve pain on my left-side and all its unpredictable associated issues, Summer 2022 brought everything to the fore. Thinking about it as the sum of every year with MS, had taught me to perfect saying things like, “Oh, I am fine!”. Clearly, I am anything BUT fine.
In plain English, right at this moment, I am going through the Mother of All Relapses. It is not going well.
A bit like a volcanic eruption, my MS relapses fall into three distinct periods over my life:
Stage 1- Scary! When I was having them but didn't know what was wrong with me.
Stage 2- Boom! My XXXL relapse when I got diagnosed.
Stage 3- The Sequel! Minor relapses or pseudo-ones. I'm hoping for no more number twos, but it’s always at the back of my mind.
UPDATE ON THE ANNUAL GENERAL MEETING
We are happy to announce that Robin Bradley, Noelle Burke and Dr Rebecca Maguire were re-elected by the members on to the Board at the Annual General Meeting. Thanks to all of you who voted for them.
Anne Restan was also elected back on to the Board by the Council delegates.
Following the AGM, there was a brief Board meeting where Maurice O’Connor was re-elected as Chairperson of MS Ireland and Jacinta Kelly was re-elected as Deputy Chairperson.
Congratulations to Maurice, Jacinta, Noelle, Rebecca, Anne and Robin.
NATIONAL AWARDS
Our 2022 National Annual Awards were presented at the Annual General Meeting which was held on zoom on 17th September 2022.
These awards recognise those who through their dedication and selflessness play a significant role in the lives of others and the progress of the Society. This year we are delighted to announce the three award winners are:
MS PERSON OF THE YEAR – SEAMUS BURKE
CARER OF THE YEAR – SUSAN STEPHENS
VOLUNTEER OF THE YEAR – CELINE O’ROURKE
Alison Cotter is the newly appointed Research and Advocacy Officer and joined MS Ireland in May 2022. Alison has a Bachelor’s Degree in Law and Business from NUI Galway and has previously worked in the Houses of the Oireachtas.
Recently MS Ireland Submitted our Pre Budget Submission which you can read in full here
Summary of key asks for Budget 2023
My name is Shirley I'm 47 years old and I am living in Monkstown, Dublin. I was diagnosed with Relapsing Remitting MS 4 years ago now first receiving my diagnosis on the 4th of July 2018. Being diagnosed felt like a relief, it wasn't really a huge shock to me as my Aunt Jo had been living with MS. I had a feeling a year before my diagnosis as I was experiencing symptoms for a while, blurred vision, vertigo, and weakness in arms were the main ones.
Liam Morrissey Msc. Ergonomics student at the University of Derby is conducting a study exploring the impact and usability of using exergames for exercise in MS patients.
Summary of key asks for Budget 2023
MS Ireland welcomes the publication of the Sláintecare Integration Fund End of Programme Report which set out the achievements of the 123 projects funded through the Sláintecare Integration Fund, including Active Neuro which was delivered by MS Ireland.
MS Ireland is supporting World Brain Day 2022 and this year’s dedication of ‘Brain Health for All’
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