The number of cases of MS is increasing worldwide and while some of this increase may be due to improved diagnosis and survival, there is also evidence to suggest the incidence (number of new cases) is also increasing. To date studies looking at the incidence of MS are based on estimates from large registries or population based studies. In Ireland there are approximately 8000 people diagnosed with MS and based on this figure we estimate that the number of new cases is around 200 per year.
Aim of study
The aim of this study is to identify all new cases of MS and Clinically Isolated Syndrome (CIS) diagnosed in Ireland over a 12 month period in order to accurately calculate the incidence rate. This would allow us to determine if the incidence is increasing in Ireland.
Who can participate?
Anyone diagnosed with MS between 1st March 2014 and 28th February 2015 can apply to take part.
What will I have to do?
If you have been diagnosed during this time period and would like to participate in the study, there would be a once off assessment which would involve a clinical exam and some questionnaires looking at a number of factors that may potentially cause or contribute to MS.
As accurate numbers are very important, if you do not wish to take part in any of the assessments but would be willing to be included in the total number of new cases, we are collecting initials, date of birth, gender and county of residence to include in the final number.
What do I do now?
If you would like to take part in this study please contact the researcher using the following details:
Dr Karen O’Connell | Email: k.oconnell@svuh.ie
Please download the Case Report form here
More information
If you would like any further information on the study you can contact Dr Karen O'Connell directly or complete the study referral form in the link above.
Dr Karen O’Connell is working full-time as a research doctor in multiple sclerosis and is based in St Vincent’s University Hospital in Dublin.