What is the aim of the project?
We are designing a survey to investigate individual’s preferences for community-based healthcare for individuals living with neuro-physical disabilities (e.g. Spinal Cord Injury, Spina Bifida, Hydrocephalus, Cerebral Palsy, Muscular Dystrophy, Stroke, Multiple Sclerosis), to examine what aspects of these services people value most. The PPIE activities will determine:
- What should be included in the survey?
- How the survey should be delivered/presented?
- Who should be invited to complete the survey?
What is the time commitment?
Approximately 5 hours, consisting of:
- a two-hour online workshop in mid-March (date and time to be decided), focusing on survey design,
- a one hour one-to-one online interview in April (date and time to be decided) to pilot the survey design,
- an optional two-hour online workshop in June (date and time to be decided) to evaluate the PPIE activities.
Who are we looking to engage with?
We are looking for 4 to 8 PPIE contributors to participate. Previous experience in research activities or PPIE is not required. We welcome:
- Any individual (adult, 18 years or older) living with a neuro-physical disability (i.e. Multiple Sclerosis),
- Any family member (adult, 18 years or older) of an individual living with a neuro-physical disability (i.e. Multiple Sclerosis),
- Experts in the provision of community-based care.
For more information, download The Role of PPI Contributor, which outlines what participation will entail.