Aim of study
The study aims to improve our understanding of fatigue in paediatric MS. At the moment, we don’t understand fatigue very well. We would like to invite young people with MS and their caregivers to tell us about their experiences of fatigue to help us to understand it better. Improving our understanding of fatigue will help us to come up with ways to help children and adolescents with MS to manage this symptom in the future.
Who can take part?
Children and adolescents (aged 18 years or younger) who have MS and experience fatigue as a symptom can take part. Primary caregivers of children and adolescents with MS and fatigue can take part too.
What will I be asked to do?
You will be asked to take part in a 30-60 minute interview with a member of the research team. We can do this in person, over the phone or on skype. We would like to interview children and their caregivers separately. All interviews will be kept confidential.
Will I be compensated for my time?
Yes, all participants will receive a £10 Amazon voucher to thank you for taking part.
Will I find out the results of the study?
Yes, we will keep you informed about the study if you would like, and will write a summary of the results for participating hospitals and MS charities.
Who can I talk to about the study?
If you are interested in taking part, or would like to hear more about the study, please contact Susan Carroll susan.carroll@kcl.ac.uk or call 0044 207 188 0196