Recruitment of People with Lived Experience to the National Neuro-Rehabilitation Strategy
Call for Expressions of Interest
News
Neuro-Mapping Project Launched by Minister Anne Rabbitte
MS Ireland is delighted to have a number of our projects included in the recently launched report on the Neuro-Mapping Project by Minister Anne Rabbitte. MS Ireland has three projects cited namely the Cognitive Rehabilitation Project, the Active Neuro Project and the DSP sponsored CEP Physiotherapy Assistant programme. Full report available here and more details here
A Letter to Mum and Dad
I will always remember the day my MS was diagnosed. Summer of 2010. It was a hot one.
Sativex Update
MS Ireland is delighted to share that Sativex has been recommended for reimbursement, subject to a managed access programme. Details of the managed access programme are yet to be shared but MS Ireland will be monitoring this closely and liaising with the Department of Health for updates which we will be sharing with our community. If you think that this medication would be suitable for you, we recommend speaking to your neurologist.
Sign up now for The May 50K starting next week
Spring is in the air, and we’re all getting out and about a bit more. With just over a week to go until The May 50K 2023 kicks off, there’s still plenty of time to get signed up and challenge yourself to walk run or roll 50 kilometres in the month of May. All fundraising is done through our website here where you can log your KM’s, hook up to your fitness devices and blog your way through the month.
MS Ireland Branch Content Creation Webinar
The MS Ireland Branch Training Webinar will take place on Wednesday, 3rd May at 4pm.
MS Ireland on Community Radio Kilkenny City on World MS Day
To celebrate World MS Day, MS Ireland has been given the exciting opportunity of a radio takeover on Community Radio Kilkenny City 88.7FM.
Being kind to ourselves is complicated but it makes life so much easier
I’m late. I schedule meetings and forget about them. I double book myself for coffee dates. I overcommit to events clinging to the unrealistic expectation that I can do it all. My life is a perpetual cycle of semi-organised chaos. Time management is my Achilles heel, a mirage glittering in the distance, just within reach but somehow unobtainable. I have always found it incredibly hard to stick to schedules, but brain fog means it’s become substantially worse. I have taken living for the now to the extreme believing that every day I wake up feeling well is limited and I’m on borrowed time. This urge to do all of the things all of the time is accompanied by latent procrastination which just adds an extra dose of panic to my entire existence. This inevitably leads to punishing guilt.