MS & Me

The View from Here; Opinions from a Life with Multiple Sclerosis:

Employment affects your brain, your mental health, the money in your pocket and life you get to live. This week Emma Rogan discusses the value of work from her perspective and how having something to wake up FOR can transform our lives. 

Ah, public transport… Train stations without elevators or escalators; Buses with seats for elderly or disabled people; Crutches or walking sticks you want to throw from the train right into the Irish Sea.

There is something about Mary Baker

On World MS Day 28th May 2014 MS Ireland hosted a one day conference, Living with MS, In Cork.

I took some time to think about my approach to my blog post. “Access” encompasses so many issues it was a little bit daunting to pick one. 

Bite Sized Pieces

Does accessibility mean the same thing to you as it does to me?

When I was first diagnosed with MS, I was given information on a number of drugs. At the time I felt that being diagnosed in my early twenties would have to work to my advantage as I would get on treatment faster and have it working in my system for a long time. As my MS was extremely active in the beginning, I felt the faster I could get on treatment the better. I looked through pages of booklets on treatments and read though clinical trials that were offered to me. One looked very appealing, but I felt that at that time I needed to be on something solid that had been tried and tested. After much research and reading, I decided to try Tysabri and went to my MS nurse with this decision. It seemed to me to be the gold star drug available for MS.

I’m sure Boris Johnson didn’t have me in mind when he was making London more accessible. More like the 20 million spectator journeys he had to facilitate during the 2012 Olympic Games! Anyhow, I was very happy to reap the benefits of his logistical nightmare when I was planning a trip to visit a friend (who also has MS) in Jolly Old London Town.