MS & Me

Recently I was lucky enough to attend a media briefing in sunny Barcelona hosted by Novartis (makers of Gilenya) ahead of a conference - Advancing Research in MS and the Brain.

I have known that something was up in the old noggin department for a few years. That sinking feeling when I forget a word I KNOW I know. When the check-out at Aldi is too much for me to keep up with. When I can’t help a nine year old with her Maths….. The best way I can describe it is to say that things aren’t working as smoothly as they used to.

In my earlier blog posts, I've mentioned that getting my MS diagnosis was somewhat of a relief, after so long of not knowing what was wrong with me. Obviously I wasn't pleased about it, it wasn't what I'd hoped for, but deep down I was kind of glad that I hadn't been spoofing all those years. 

'Nobody realises that some people expend tremendous energy merely to be normal' Albert Camus 

Baz Luhrmann had one piece of advice that he considered vitally important to give to the class of ’99. He said that if he could only offer one tip for the future it would be to wear sunscreen. He had other tips to offer but the wearing of sunscreen was 'the tip'

Isn’t this MS and Me blog an exciting feature? I am really enjoying reading the experiences of others and the shared understanding. Please make sure you comment on what you read.

Welcome to the sequel of my blog about living life with MS! Thanks for reading the first instalment and your kind words of encouragement. Keep them coming!

When people hear that I have MS, they often ask about the affects of the illness, and its symptoms.

'From asking ‘is this normal’ to reaching out from isolated settings; having an MS community, even online, is important to living with multiple sclerosis' 

'Helen felt increasingly embarrassed about her constantly ‘trying to give up’ stance. She realised that she could no longer just dip in and out of smoking; she was totally hooked'