News

Lockdown and Covid have changed me forever.

For the past 10 years or so I have been keeping a similar routine. I'd get up in the morning, have a cup of tea, breakfast and get on with my day. My schedule would be all about spending time with people. It would be getting children ready for school or creche, chats with the coffee guy at my station, watching the bleary-eyed strangers on the train or the lovely woman who always graced the pavement past me on the street when I walked to work.  There’d then be the banter with work colleagues as we got on with the tasks at hand.

There are the parts of Christmas I love, like time with family, winter walks, twinkling lights and evenings by a cosy fire. But the parts I like don’t always gel well with my MS. As a result, Christmas can turn into something of a marathon for me and excitement tends to quickly give way to dread when I realise there is no way my body will cope with all the festivities.

There are the parts of Christmas I love, like time with family, winter walks, twinkling lights and evenings by a cosy fire. But the parts I like don’t always gel well with my MS. As a result, Christmas can turn into something of a marathon for me and excitement tends to quickly give way to dread when I realise there is no way my body will cope with all the festivities.

Earlier this year, MS Ireland hosted a webinar on fatigue management with Dr Michelle Murphy. Below is a summary of the information provided in the webinar.

The symptoms of Multiple Sclerosis can vary greatly from one person living with the condition to another. Fatigue is a very common symptom of MS, impacting between 75-90% of people living with MS, on some level. Fatigue can create feelings of exhaustion, tiredness, weariness or lack of energy. It is different to the fatigue experienced by those who do not live with MS. MS related fatigue can be very difficult to diagnose, understand and communicate. But what exactly causes fatigue? What effective techniques or strategies can be used to manage fatigue?

 

New paper from the International Progressive MS Alliance - Charting a globlal research strategy for progressive MS – An International Progressive MS Alliance proposal.

Recently, the Multiple Sclerosis Journal published a paper by the International Progressive MS Alliance. The paper, “Charting a globlal research strategy for progressive MS – An International Progressive MS Alliance proposal’ is a strategy to find better ways to care for people with progressive forms of multiple sclerosis (MS).

MS Ireland was delighted to see MS well represented at the Future Neuro Patient Public Involvement (PPI) event last week.  

MS Ireland in partnership with Novartis Ireland are calling on artists around the country to take part in an exhibition celebrating World MS Day in May 2022.

Artists living with Multiple Sclerosis or their collaborators are invited to submit works of art to be featured in an exhibition by MS Ireland in partnership with Novartis Ireland. Understanding life with MS can be challenging for some people as it can be difficult to fully understand the impact of some of the experiences by those living with MS.

Dear Friends,

At the beginning of the COVID-19 pandemic, MS Ireland had to adapt some of the projects that we normally work on. The pandemic had an impact on our ability to carry out various fundraising activities and this resulted in a decision to scale back some of the projects we normally work on to ensure the sustainability of our organisation. One of those projects was MS News. We decided to share MS News in digital format only, in 2020 but are happy to be returning to physical print as we know that some of you may not have access to the internet.

MS News uses considerable resources in terms of creating, printing and posting. We are currently reviewing this part of our work and assessing its relevance to our community. We would love to hear from you on this. On page 35 you will find a short survey which we would greatly appreciate you completing and returning to us. Alternatively, you can email your feedback or suggestions to the editor, Aoife Kirwan – aoifek@ms-society.ie.

For the second part in our look back series , this week we are looking back on the MS and Me blog posts from July to December 2021.

As the year draws to an end, we are looking back over some of the blogs written by MS and Me bloggers during 2021.

We’d like to say thank you to everyone who reads and shares the blog posts and to those of you who send messages and write comments.

Writing a blog piece can be a challenge; sometimes it is difficult to share our experiences. We hope that our words are relatable to other people with MS. We also hope we help people without MS understand more about the condition and that we give a snapshot of what life with MS is like in Ireland.