MS & Me

Join Ava Battles, CEO of MS Ireland, in celebrating a decade of empowering stories.

Guest blogger Jordan McCarthy opens up about his personal MS journey and his reasons for encouraging your participation in this year's MS Readathon campaign.

Multiple Sclerosis… the name in itself can be frightening at any stage in life, even for those carrying the burden of it. What we often don't do, is talk about it as honestly as we must.      

Sometimes, we fear the reaction of those living with us, or we want to hide the unpredictability of symptoms popping up at the wrong time.

There are so many things that you provide, for which I am thankful for. When you live with a chronic illness, life can become overwhelming and tiring. You provide me and other people living with MS with so many services that can help make our lives that much easier. In February you gave me the opportunity to attend the younger persons respite stay in the MS Care Centre in Bushy Park. I was very apprehensive about attending as my mobility is now very good and my MS is more of an invisible disability as of now. Although I was in two minds about going, I am so happy I did as it was the best week of my life. 

I don’t want to dive into a long list of criticisms of myself, my life and how I could have done things better. That would be the easy way to approach this article and god knows I traumatise myself with these thoughts regularly enough. Life is always easier when looked at with the benefit of hindsight. Rather, I would like to look at this through more forgiving eyes. Sure, I made mistakes and could have gone about things in a more positive, productive way but I say this with the benefit of lots of experience and from learning things the hard way. I did the best I could with limited knowledge at the time. 

So, let’s dive in - what have I learnt that could have helped if I had come to the realisations earlier. 

The first weekend in September is always a big one in our house. No back to school for us, but every year we pack up the car and head off to Electric Picnic. This year though, I messed up the organising, and between the jigs and the reels we couldn’t go.

This is the hardest blog post I have been asked to write for MS Ireland's MS and Me Community Blog. Emma Valentine

'I hope that you have an understanding of my illness, now that you are older. I know I get tired and forget things. I hope that you can see that it’s not me, it’s the Multiple Sclerosis' 

The innocence and compassion of childhood are qualities that I often wish we carried through to adulthood. If they had, I believe they would make us more empathetic and understanding human beings.

Emma Valentine shares what self care  living with Multiple Sclerosis  means to her, what settles her mind, calms her and that feeling of preparedness.